CARE Principles

Definition: The CARE (Collective benefit, Authority to control, Responsibility, Ethics) Principles for Indigenous Data Governance are people and purpose-oriented, reflecting the crucial role of data in advancing Indigenous innovation and self-determination. These principles complement the existing FAIR principles encouraging open and other data movements to consider both people and purpose in their advocacy and pursuits.

Collective benefit
Data ecosystems shall be designed and function in ways that enable Indigenous Peoples to derive benefit from the data.
C1- For inclusive developmet and innovation
C2- For improved governance and citizen engagement
C3- For equitable outcomes

Authority to Control

Indigenous Peoples' rights and interests in Indigenous data must be recognised and their authority to control such data be empowered. Indigenous data governance enables Indigenous Peoples and governing bodies to determine how Indigenous Peoples, as well as Indigenous lands, territories, resources, knowledges and geographical indicators, are represented and identified within data.
A1- Recognizing rights and interests
A2- Data for governance
A3- Governance of data

Responsibility
Those working with Indigenous data have a responsibility to share how those data are used to support Indigenous Peoples’ selfdetermination and collective benefit. Accountability requires meaningful and openly available evidence of these efforts and the benefits accruing to Indigenous Peoples.
R1- For positive relationships
R2- For expanding capability and capacity
R3- For Indigenous languages and worldviews

Ethics
Indigenous Peoples’ rights and wellbeing should be the primary concern at all stages of the data life cycle and across the data ecosystem.
E1- For minimizing harm and maximizing benefit
E2- For justice
E1- For future use

The current movement toward open data and open science does not fully engage with Indigenous Peoples’ rights and interests. Existing principles within the open data movement primarily focus on characteristics of data that will facilitate increased data sharing among entities while ignoring power differentials and historical contexts. The emphasis on greater data sharing alone creates a tension for Indigenous Peoples who are also asserting greater control over the application and use of Indigenous data and Indigenous Knowledge for collective benefit. This includes the right to create value from Indigenous data in ways that are grounded in Indigenous worldviews and realise opportunities within the knowledge economy.

Related terms: FAIR Principles

Found in: "CARE Principles for Indigenous Data Governance". https://www.gida-global.org/care

References: Research Data Alliance International Indigenous Data Sovereignty Interest Group (2019). "CARE Principles for Indigenous Data Governance". The Global Indigenous Data Alliance. GIDA-global.org

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CARE Principles for Indigenous Data Governance
"The current movement toward open data and open science does not fully engage with Indigenous Peoples rights and interests. Existing principles within the open data movement (e.g. FAIR: findable, accessible, interoperable, reusable) primarily focus on characteristics of data that will facilitate increased data sharing among entities while ignoring power differentials and historical contexts. The emphasis on greater data sharing alone creates a tension for Indigenous Peoples who are also asserting greater control over the application and use of Indigenous data and Indigenous Knowledge for collective benefit.

This includes the right to create value from Indigenous data in ways that are grounded in Indigenous worldviews and realise opportunities within the knowledge economy. The CARE Principles for Indigenous Data Governance are people and purpose-oriented, reflecting the crucial role of data in advancing Indigenous innovation and self-determination. These principles complement the existing FAIR principles encouraging open and other data movements to consider both people and purpose in their advocacy and pursuits."

FAIR Guiding Principles for scientific data management and stewardship can be accessed here

Reference: Research Data Alliance International Indigenous Data Sovereignty Interest Group. (September 2019). “CARE Principles for Indigenous Data Governance.” The Global Indigenous Data Alliance. GIDA-global.org



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